Fibromyalgia

[buffedmama]

I was just wondering if anyone here has FMS?

I was diagnosed a couple of years ago. Back then I was in tons of pain and I was heavily medicated.

Now that I've gone back to training, I'm not on any medication at all! I owe it all to the weight training and exercise. Keeping active allows me to stay active... Make sense?

I still suffer from the occasional FMS flare up, but they are brief and I'm managing the pain with marijuana... (no prescription for it yet, but i'm working on that)

 

[SteelWeaver]

I think fawnmarie knows about this. You could try searching her posts.

 

[rez]

I was just wondering if anyone here has FMS?

I was diagnosed a couple of years ago. Back then I was in tons of pain and I was heavily medicated.

Now that I've gone back to training, I'm not on any medication at all! I owe it all to the weight training and exercise. Keeping active allows me to stay active... Make sense?

I still suffer from the occasional FMS flare up, but they are brief and I'm managing the pain with marijuana... (no prescription for it yet, but i'm working on that)

what exactly is it?

 

[buffedmama]

Re: Re: Fibromyalgia

what exactly is it?

That's just it... They don't know. Apparently it's inexplicable pain in the connective tissue... But anti-inflammatories don't work. Most people with FMS rely heavily on morphine-like pain medication.

FMS is a type of neurotransmitter disorder, in which the pain-signals that our brains receive are intensified, and our muscles do not get the healing nutrients they need.

There are many symptoms and other bodily problems that go hand in hand with FMS...

• recurrent flu-like illness
  recurrent sore throats, red and injected
  painful lymph nodes under the arms and neck
  muscle and joint aches with tender and trigger points - up to 18 of them
  night sweats and fever
  severe nasal and other allergies
  irritable bowel syndrome (IBS)
  weight change - usually gain
  heart palpitations
  mitral valve prolapse
  severe PMS
  yeast infections
  rashes and itching
  uncomfortable or frequent urination
  interstitial bladder cystitis
  chest pains (non-cardiac)
  temporomandibular joint dysfunction (in the jaw)
  hair loss
  carpal tunnel syndrome
  cold hands and feet
  dry eyes and mouth
  severe and debilitating fatigue
  widespread pain
  numbness in the limbs, not painful like pins & needles
  painful swelling in the hands, legs, feet, neck
  GERDs (gastro-esophageal reflux disorder)
  “growing pains” start in childhood and teens, continue into adulthood
  widespread body pain during/after physical exertion
  other chronic illness(es) usually present (like diabetes, hypoglycemia, asthma, lupus, ms, etc.)

 

[fawnmarie]

Yep, I have fibromyalgia - diagnosed in June 2001.

Played around with a couple of different protocols for it - tried a great many things - even the guai protocol - which worked well to a degree. The last thing I wanted was to end up doped up on painkillers.

My only "med" was an occasional soma for the lower back muscle craps I get before my period. I think it's PMS-related magnesium deficiency, rather than fibro, because it cycles around my period, and extra magnesium pretty much takes care of it - and I've dropped the soma, too.

I researched some of the more promising pharmaceutical treatments (heparin therapy, antibiotic therapy, etc.) and duplicated them using natural "alternative" medicine, which helped a great deal.

Also decided to try an experimental homeopathic protocol that did wonders for my condition. Started it in February 2002 and went into remission in June 2002, and have done nothing but improve since. More info at http://www.customhps.com

Actually, I don't even consider myself as "having" FMS anymore - since it just is no longer an issue in my life. I need a little more sleep than I used to, but then again I used to live on 5 hours a night. Need to warm up a little longer before working out, and add weight a little slower than I used, and definitely need a cool-down session (stretches). Other than that - I'm back at my two jobs (home biz & 9-5'r), functioning normally, able to exercise, able to sleep normally and play and have fun.

I've done as much research as anyone without a medical career can do on the condition, and my personal conclusion is that it is a neuroendocrine disorder caused by cortisol-induced damage to the hypothalmus. This causes a cascade of both endocrine disorders and neurological imbalances that result in the wide and weird array of symptoms - everything from the interstitial bladder disorder (caused by faulty calcitonin regulation) to the heart palpitations (caused by pancreas disregulation) to the sleep disorders (caused by over-calcification of the pineal gland and adrenal exhaustion).

Anyway, that's my take on the disease. The Custom Homeopathics and the "home-made" medical treatments together did the job, and I seem to be a whole and functioning human again.

Fawn

 

[valerie]

Wow Fawn that is really impressive. Good for you taking the lead on this and doing things outside the box. I know this affects lots of folks. Good health to you girl!!-valerie